Out of Balance

Slide1I have recently gotten too focused on intervention improvement at the expense of joy-of-the-moment.

I try to mask my strain, but my kids feel it and reflect it in their actions and lives.

You may skew to the other direction.

See the heart?   It is supposed to be divided equally—half of my everything doing all I can, and half loving as we are right now.

John has two occupational therapists (both are O.T.R.s), and they know a lot.  I have leaned a bit heavily on them for help, and they have generously contributed great peace to me with their ideas.

So, thanks to Alma Liotta and Rosemary Slade.

I share with you my mom vulnerability and regret.  I hope to encourage you to seek “extra” help from good, wise people, even if it isn’t exactly their niche.

If we don’t ask, no one knows.  It is in the showing of our sadness, our seeking, our imperfections, our vulnerabilities, that lets others help us.   To get back to this balance:Heart

Torn Heart?

John has once again outstmarted me. torn heart 2

In two restaurants during our recent vacation trip to Galveston, John tested me past my good-natured mom endurance.

Sometimes, when he senses a weakness (in public!), he tries to get away with stuff that he knows is not the plan.

Twice, two different days, I found myself saying some jibberish like, “you can decide to sit here nicely like you know how to do, or we can go outside and I will give you five swats…..”.

(Yeah, right, Mom!  That will be great moments in intervention parenting.)

Once we got home, and the subject of good choices came up, John looked me dead in the eye and said something about “getting 100 swats”.

So back to the teachable moment of me saying how sad Mom was in the restaurants, that “you tested me to see if you could get away with stuff, to see if I still loved you enough to keep the same rules”….

It was a stalemate.

He changed the subject.

And, by the way, that divided-in-half heart represents the advice I received long ago from Alma Liotta, OTR, “Take half of your heart, your energy, your everything and do all you can for your child.   Then, take the other half and love him just as he is.”   

Peace be with us,

Gayle

1 Mouth + 2 Ears = What are you trying to say?

Ears ListeningRemember the old saying:   We have 2 ears but only 1 mouth?

(So we can hear twice as much as we speak, right?)

“NeuroTribes” (by Steve Silberman)  in the review at http://www.wired.com/2015/08/neurotribes-with-steve-silberman/

would say that when our kids with speech delays show self-harming:

Maybe it is frustration.  (Please, tell me why?)

Maybe our 1 mouth needs to zip it & our 2 ears REALLY listen to whatever is being communicated, elegantly or not.

Neuro-diversity (as an increasingly appreciated set of skills) + Intrinsic Motivation = Hope of the employment open road ahead for learning differences.

So when we pray for expressive speech, maybe our answers are in a new tongue—-coming from one not as agile as others might be.

May I listen better today.

Peace be with us,

Gayle

 

 

“It is Wrong”

Over the summer, John has had some practice being around kids who ridiculed his speech.

Not easy for Mom to step back, and teach him how to self-advocate.   2015-08-19 13.11.48-1

It is far easier to hover and try to shield him from the hurt of others.   But then I fail to give him tools for the next time.

Because the next time will come.  Won’t it?

So, we have these little signs in the home.  We practice saying in a strong voice this straightforward sentence:  “It is wrong to hurt other people”.  Practice helps John with a quicker reaction of what to do.

John can stand up for himself appropriately (kinda) to family.   Easier for John to say this to people he loves and is comfortable with than to other kids.

The unknown is more sensory stressful.    So he turns away and avoids.   He clutches (imperfect auditory processing and flow of receptive speech to expressive speech), and then knows he can’t keep up in said words.

This has happened twice that I know of on playgrounds, and twice someone has stuck up for him.

It will happen again.   Will there always be a friend to fight his war for him?

When this happens around me, I always try to help kids to understand what it feels like “when their tongues don’t work”.   I tell them to grab their tongues (I grab my own tongue), and then try to talk.   They get it.

And we extend the teachable moment by laughing and trying to say sentences together.

StopBullying.govAlso, a thank you, The Forsberg Law Firm, P.C., for sharing this 4-page Bullying Tip Sheet (more info at StopBullying.gov)

Best,

Gayle

Today, I Yelled Back

Lion RoarMore like a roar, actually.  A bellowing lion in a very small space.

No words, just mirroring back (and magnifying) all that boy-lioncub yelling in the wee-little, closed-in bathroom.  (We call it the (time-out)  “Loud Room”, the “Angry Room”.)

And then I heard a mom’s voice saying, “John, sometimes you make Mommy so sad I want to cry and cry and cry all day.”

So then, we decided to try again.  Start over.   Do better next time.

It is called natural consequences, a part of interventions (from the Latininterventiō”), a “systematic process of assessment and planning employed to re-mediate or prevent a social, educational, or developmental problem: early intervention for at-risk toddlers.” (Wikipedia)

You see, no other tool was working.  None of the redirects were working.  None of my “best laid plans of mice and men”.

When nothing else works, it’s sometimes “an eye for an eye”—to better understand the future social consequences of a loud, lousy decision.

He understood.   He made better choices.

It probably won’t last all day.   But each time, the understanding of the consequence lasts longer.

No other choice, it seems, than reciprocity every once in a while. (“that is what it feels like”.)

Randomly, reflecting the learning of B.F. Skinner’s chickens pecking at the corn.

“Tough Love” interventions build the respect John needs to function within society.

No time to lose.  He gets older and bigger by the day.

Peace be with us,

Gayle

(P.S.  Clip art available to anyone via PowerPoint.  Thank you.  Simba, roar on !)

In Over My Head

“Please mute me.  I am drowning . . . .”

We therapy moms who dream of sentences get in a certain method of talking…..saying things to reinforce learning, first in one way, then another.  You could easily call it “too many words”.

(Two adults have chided me for this over-informing, so I try to be better self-aware.)

For 2 weeks, I added another 8-year-old boy (my step-grandson who is like a same-age cousin to my boy), a very verbal little charmer.   (So, I have one 8-year-old who talks like a 2-year-old, and the other an 8-year-old teenager with attitude.)

There came a hour when I was overwhelmed with the 2 boys yakking in opposite directions.   It took me a few minutes to realize I didn’t have to respond to “everything”.

I went non-verbal myself for a while.

I sort-of directed traffic with hand motions, facial expressions, and body language.

It was utterly bliss.  I stopped trying to keep up.

Not a long-term child-raising strategy.  But an oasis of calm when I needed it.

You deserve the time of peace to think.

Gayle

 

Sneaking Up On It

Love movies, unless we hate them.

My 8-year-old son John has never made it through a movie at the theater.    The theater is always too loud, too scary, too everything-too-much.

But then Inside Out showed up:  Emotions with cute little voices, faces, behaviors and a story to tell.   Gotta try, right?

So, Cousin/Nephew Adam got recruited to help.   Here are some photos of the elaborate plan to get John through the closing credits.

We rehearsed at home, got to the theater early, and used every trick Mom could think of. Including playing in the dark before anyone else got there and using headphones for sensory boundaries.

Try this.

We made it.  John has a new experience, a new neural pathway network to keep deepening.  Something to do next time with friends.

It probably wouldn’t have worked without a buddy.  This is the magic of peer-modeling.   When kids help kids.  There is nothing better.

Matching Emotions

 

Can I Buy Some Attention, Please?

2015-07-22 17.11.36Ever wish you could just buy something, as a way out of a problem?

I wish I could buy parental attention, so that I could have a ready supply for my son, for all those moments when I just need to do something else.

John hates math, and he is really hating TouchMath every day.   Every day, I make a list like this, on old-fashioned paper (Thanks, Rosemary Slade), and just point.   Like the Ghost of Christmas Past.  And I have added, “say the words or we start over”.

I was frustrated, drowning in re-directing, my son John playing me like a harp.   Stalling.  Driving me mad.

So Mom got smart.   I started taking him with me.   Wherever I needed to go.   To the kitchen, to the bathroom, to the office.  I had already learned I couldn’t walk away (because he cheats), and I couldn’t hurry him up (because he stalls).  My attention to his TouchMath seems to be ESSENTIAL.

That is why I want to buy attention.  A big fat box of it, that I can throw at the problem and walk away.

But that isn’t how John is going to learn.  Learn TouchMath, learn ANYTHING.

So, I make my attention portable.   I keep aware of the sounds, so I know which chapter he is in by the words I hear.   My eyes may flit away temporarily as my hands do my chores.  But Mom keeps her cool—-because the stall is now John wasting his time.  NOT MINE.

The TouchMath apps follow quite well the theories of their (free) training, but there is NO substitute for paying attention and staying in the moment with his learning.

Today, finally, John took delight in marking off each chapter done, after he showed me the chapter summary screen (so watch for that). 

I have learned to be aware of small moments of new learning (evidence that a learning hole has been back-filled), and never interfere of that demonstration.   But, oh my, I soak up the memory and dance in my heart for every small achievement, whatever he didn’t do before, and is now doing.

So, fellow parents, take heart that your vigilance and persistence of giving attention is vital, precious, necessary, and your own unique reward.

We really can’t buy attention, right?

We can only give it.

Best,

Gayle

 

 

That Will Cost You …..

It is one thing to recite what a quarter, dime, nickel are worth.  Like a robot.

It’s something else to be excited when you pick up a stray quarter because you know what it will do for you.

It has been a struggle to teach why coins are worthy when all our transactions are efficient credit card ones and Mom is mostly always in a hurry.  The teachable moments on coins pass by.   2015-06-24 15.54.10 2015-06-24 15.49.31

The great news is that John loves to mess (you know it is really “stim”, right? as in “perseveration”, to do something over and over) with Rosemary’s clock timer during OT sessions.  (Rosemary Slade, O.T.R.)    And consistency with home chores is way past due.   John now has a motivation to do chores because he wants to buy a stim!  (and other things, but never underestimate the clever leverage of a stim!)

Rosemary and I brainstormed how to extend the teachable moments involving time, coins, counting, self-control, and choosing personal rewards.   We list the things he is working for (swimming, movie, computer, Mom’s phone), and when he makes a bad choice, he has to decide which one gets eliminated.   This takes some thought, and we can see him making the calculations.  He has to pay fines for humming (another stim) and other bad choices.  He also gets to buy more play with the phone timer.

John is blessed that Rosemary is willing to add this extra “transaction” complexity, including making change, to our OT sessions.

(And they both seem to love it—I hear a lot of laughter and negotiation going on.)

So, with your children—use their stims creatively.   It’s all fair in love and teachable moments.

More Rope!

Risk is Learning

2015-06-17 09.24.27 There was a day I was afraid to let go of his hand.  The possible consequences ignited panic.

Since that time, John has earned a long, nearly-endless rope, inch by inch, by his many good choices. (You know he also made a lot of lousy choices along that path, right?)

I have had to stand my ground, make him come back to me as he tests my resolve with his mischievous faux escapes.  (He thought he was hilarious and I was seeing possible disaster.)

Eventually, rope earns more rope.

And now I test his intrinsic motivation as we pull into the parking lot of his beloved i9 basketball camp.

Will he stay in the car until I park so he can turn off the car (new quasi stim) or grasp the freedom to enter solo as I stop at the curb?

All that rope to do the right, “big boy” thing that he sees other children doing—to go inside the building on his own, and tell them he is here.

Or to choose fear, hesitation, the ignition button stim?

One decision path leads to his future, your child’s future, in this neuro-typical world.  The one neuro-typical world we all want so desperately to share with our kids.

Our kids who need to have opportunity to earn more rope.

As John says, “practice brave”.  Stand your ground.

Peace be with us,

Gayle